All email addresses have been removed to prevent spamming mechanism abuses.
Tested positive for Hep C 12-04-1999
Am having same symptoms Kev described.
Looking for help!
Spokane, WA USA
- Monday, January 31, 2000 at 15:39:09 (CST)
I am making this inquiry and seeking as much information on
the subject of Hepatitis C for a close family relative. I am
quite upset and distraught right now. Please pray for me &
Brooklyn, New York 11208 USA
- Monday, January 31, 2000 at 14:12:43 (CST)
My husband, too, has Hep C. I have trying to find alternative treatments for him. He
already is taking milk thistle and dandelion and drinking essiac tea along
with vitamin supplements. He is also diabetic so I have quite a challenge
cooking for him. Your story was quite an inspiration of hope. Thank you for
creating this site to help those of us in need. God Bless You
Coldwater, MI USA
- Sunday, January 30, 2000 at 12:51:56 (CST)
Social stigma? If we keep our disease a secret it will grow. HCV has thrived on our
ignorance so please let's don't add to it by being ashamed of who we are & what we
have. It's a disease, a killer, let's expose it!
Alvin, TX USA
- Sunday, January 30, 2000 at 08:11:38 (CST)
my wife was found to have hepc two years ago because of lack of the insurance we had
atough time getting her treated and every doctor we went to said something different, and
kept changing her precptions and alll they did was tomask the problem. i took her in the
hospital a year ago christmas and they did all of testing as i had very good insurance and
found out that her liver wasd also damaged. my wife always was very concerned about her
health and tried to keep her self as fit as possible. this past thanksgiving she took a
turn for the worst and was still going thru test for the transplant which takes a long
time. just before christmas she started bleeding internally and took twelve pints of blood
to keep her going as a vessel had burst in side of her and they had to band it off. we got
her home for christmas and the new year which was the only miracle that i wanted and i
told god this and it was granted . two and a half weeks ago i had to take her back in the
hospital again as she was having major problems with eating and sleeping, she passed away
on the 21st of this month after a long time of suffering,and she was on the list for
immediate transplant but all of her organs gave out. i miss her very dearly and it is
lonesome around here without her but i still her smiling face all the time. i just wanted
to tell all of you dont give up even though it is very hard to keep going .i just wish
that we could get the government and every one else to know about hepc.god bless all of
you.and i will keep all of you in my prayers. firstname.lastname@example.org
dallas, tx USA
- Friday, January 28, 2000 at 20:42:40 (CST)
This is a amazing! I don't feel so alone! One more week of combo and I'm done .
Please keep me in our prayers as I will keep all of you in mine. This is a great
coal center, pa USA
- Wednesday, January 26, 2000 at 23:12:27 (CST)
My husband was diagnosed with Hep C in April 1999. In January 2000 the doctors ran a
RIBA test and say he does not have Hep C. We don't know if he was misdiagnosed to begin
with or if he is one of the rare cases that actually gets rid of it. For almost a year we
lived with the disease and the toll it takes on families and friends. It's a rough thing
to have to have to deal with. All Hep C patients are in my thoughts and prayers everyday.
I feel there is simply not enough being done to get the Hep C info to the public and
increase awareness. I have written my congressman several times, emailed talk shows, etc.
It just doesn't seem like anyone is listening. Even though the virus is no longer in my
family I will continue to write whomever I can to try to get more info out there. It is
something I feel very strongly about and wish I could do more. I will not be able to
attend the event in Washington, however I pray that many can and hope that someone in
Washington will open their ears and hearts and do what is right. Good Luck and God Bless
to all who have to deal with this every day.
- Wednesday, January 26, 2000 at 20:42:55 (CST)
i'm looking up info for my sister who is infected with hep-c and does'nt have use of
a computer...this site has been very helpful.
Scranton, PA USA
- Wednesday, January 26, 2000 at 19:20:20 (CST)
I forgot to mention that my dad was injected with malaria in the early 60s
experement treatment. Anyway my dad has had it he belives for 30 or more years. I will not
worry how i caught it but it at least makes me feel a little better knowing hes still
alive,but i am scared as hell. I have three little boys and a thriving jewelry store. I am
just really getting ahead in life and this this this this. Well i will beat it ya better
Know that. Please anyone wityh some help please e mail me SId.
baton rouge , la USA
- Wednesday, January 26, 2000 at 16:28:11 (CST)
I just found out that i was exposed to c sometime in the past,i went to give blood
for my mothers operation and walaaaaaa. Well i been wondering why i get tired. I work out
and try to run so i am pretty fit. Maybe 10 pounds overweight. I am gonna get kevs
liverite,milk thistle plus and i drink bottled water everyday. I am also going to the doc
feb 24 to check on interfon. Spelling. Its scary,but i am a winner and will never give up
baton rouge, la USA
- Wednesday, January 26, 2000 at 15:55:10 (CST)
I have a family member who has HCV 2+ years. We recently saw something on the web
which sugested that a cure had been found in Hungary. Is their any thing to it? Please
respond. Thank you C. Denison
Pensacola, Florida USA
- Wednesday, January 26, 2000 at 13:47:00 (CST)
There were too many messages on guest book to go through them all but, I was
diagnosed with Chronic Active HCV in 1988 and I'm still here. I will happily try to answer
any questions or give any support that I can. My advice to newly diagnosed, beware of who
you tell. The social stigma is overwhelming.
Las Cruces, New Mexico USA
- Tuesday, January 25, 2000 at 20:41:39 (CST)
Was diagnosed last month, starting combo therapy next week, doesn't look like I have
alot to look forward to in the next 24 weeks...thanks for your stories...
Louisville, KY USA
- Tuesday, January 25, 2000 at 20:30:44 (CST)
This is great!!
Klamath Falls, OR USA
- Tuesday, January 25, 2000 at 11:43:31 (CST)
I was so glad to find this site. I have read the stories and
can relate to them. It's good to know I am not alone in this battle.I have felt so
isolated because of the way people trat you once they find out you have Hep C.Ihope to be
in Washington for the 2000 Ralley. Good luck and may God be with all of you
Church Hill, TN USA
- Monday, January 24, 2000 at 17:53:46 (CST)
How do I find a local support group? I'm on my second week of combo.
Alvin, Texas USA
- Monday, January 24, 2000 at 04:25:33 (CST)
My 11 year old son and I have Hep.C. We're both on Rebetron, but I'm having trouble
paying for his. His insurance co-pay is 30%. Our income is not sufficient to pay this, yet
we don't qualify as low income either. Anybody out there know anything that might help?
Ontario, CA USA
- Sunday, January 23, 2000 at 21:54:02 (CST)
So Glad that your here. So many questions.
Whitney Point , New York USA
- Sunday, January 23, 2000 at 20:40:05 (CST)
I'm hunting for a local support group. Any ideas?
gig harbor, washington USA
- Sunday, January 23, 2000 at 20:25:42 (CST)
i've just been diagonised with hep c and am looking for as much info as possible.
san antonio, tx USA
- Sunday, January 23, 2000 at 17:33:53 (CST)
Your a Good Man Charlie Brown :)
OPUS Q PENGUIN ESQ
Providence, RI USA
- Sunday, January 23, 2000 at 13:30:56 (CST)
I HAVE HEPTITIS C AND CAN NOT TAKE THE MEDICIDEN FOR IT
panama city, florida USA
- Saturday, January 22, 2000 at 22:35:12 (CST)
I was diagnosed 5 yrs ago with hep-c I just completed 12 months of
injections 3 times a week. I have responded to the infergen very well, it had the side
effects depression pain in the joints fevers of 102, I was able to keep my job and I am
feeling pretty good these days. I am just greatful I feel up to spending time with my baby
he is 13 yrs old and my pride and joy. I go back for more labs in 6 months hopefully I'll
still be in remission. Peggy
Dsm, Iowa USA
- Friday, January 21, 2000 at 20:18:57 (CST)
I am interested in talking with anyone who is willing . I have never been so
overwhelmed in all of my 47 years.
Waymart, Pa. 18472 USA
- Friday, January 21, 2000 at 09:42:39 (CST)
just had liver biopsy, going to start combo therapy in 2 weeks pretty scared, I don't want
to quit work, but don't
know if i'll be able to handle it. But I need something
to keep me sane. I don't know anyone with hep c so its been very scary. Thanks
allenpark, mi USA
- Friday, January 21, 2000 at 07:13:37 (CST)
Was diagnosed in Sept 99 and am about to begin treatment.
Richardson, TX USA
- Thursday, January 20, 2000 at 20:23:20 (CST)
Diagnosed with hep C recently - i had a liver biopsy and came back with medium level
of the disease, however
my doctor wants to start me on the inferon combo treatment and are now waiting approval
from my insurance. i am also diabetic,
any help or information about the treatment will be very helpful as my wife and i are not
sure what to expect.
Houston, Texas USA
- Thursday, January 20, 2000 at 03:26:01 (CST)
Great site! I have HepC and CFS/CFIDS and have a new website for those with any
chronic illness. You will find my story and lots of hope and encouragment. I offer a email
support group ~ come join our prayer warriors and be blessed!!
Fern aka Faith
- Sunday, January 16, 2000 at 13:21:31 (CST)
Diagnosed HepC in Dec. 99, following heart surgery. No transfusions, but got it
anyway. No other exposure; donated blood regularly and no flags before. They don't really
know all the ways it's transmitted. Trying herbs and vitamins. Heart problems prevent
Orlando, Fl. USA
- Sunday, January 16, 2000 at 00:04:41 (CST)
i really enjoy this i get so much information from here/. i just started my combo
treatment 2 weeks ago and it has not been easy but thanks for all the information .
houston, texas USA
- Saturday, January 15, 2000 at 22:19:24 (CST)
On November 8, 1999 I lost my mother-in-law to Hepatitis C. It has been very hard
for our family toget thru this. She was 45 years old and was diagnosed 5 years ago, but
has had for 23 years after receiving a blood transfusion with the birth of her second
child. We found out on Dec. 15(which would have been her birthday) that my
brother-in-law,(the second child) was diagnosed with Hepatitis C. I think that its
wonderful that you have this website to inform people. There is so much educating that
needs to be done. I want to get involved and do what I can.
Hillsboro, Ohio USA
- Thursday, January 13, 2000 at 22:00:12 (CST)
thanks for being there or all of us
Palmyra, Pa USA
- Thursday, January 13, 2000 at 18:29:13 (CST)
Hi, Glad to find a source of good info. Thanks, I was just diagnosed 3 days ago
& am awaiting the results of the confirmatory test. I only wish it would come back
neg. but what are the chances??? Also am concerned about taking the interferon. thanks
- Thursday, January 13, 2000 at 04:13:17 (CST)
Hi just found this web site. And hoping maybe a good story will help. I was told Oct
of 1989 that i had hep non a/b. Took the interferon etc etc went from 190lbs to 150lbs. My
ALT were running in the 200-300 range. Starting reading a Herb book and natural healing
starting taking 2 milk thristle tablets 3 times a day for 6 month and fresh squeezed
carrot and beet juice 2 cups a day. And then after 6 month of blood work my ALT count was
down to about 100. Went off for a month increased to about 150. Went back on 6 month and
dropped to the 80 range. Off for a month increased to about the 100-110 Back on 6 monthes
down to normal range. Now at 60 and holding steady. I was told to always give it a month
break in between to give the body time to replensh itself. Still do the carrot juice in
the mornings and of course still some of the depression but ultrasound today show no liver
damage. So listen to your body, GOD put the herbs here for a reason. Just thought I would
share that with you all!!!!! GOOD LUCK and GOD BLESS
monrovia, cailf USA
- Wednesday, January 12, 2000 at 17:58:53 (CST)
My husband is 37,waiting for a liver.I want to help.If I can do anything let me
know.....Everyone remember to be persisant with your doctors...sometimes it takes
that.Bless you all,Vic
Greenville, NC USA
- Tuesday, January 11, 2000 at 22:08:09 (CST)
suspect i'm hcv+
bronx, ny USA
- Tuesday, January 11, 2000 at 20:52:33 (CST)
Need to find out as much info. for my dad's sake as possible since we now know he
has Hep c & diabetes. He's been in & out of coma's and has 10% left to his liver.
That's too little and we are scared senseless since this Hep c disease has no cure. It is
frustrating to see him fade fast without some shred of help that any dr can give him to
prolong his life. Prior to discovering he had Hep C he wasn't sick a day (hardly ever) in
his entire life. He must have gotten it 45 years ago when he had malaria. He hadn't been
sick in 45 years since so you can imagine our surprise when they said he has Hep C and
there is no cure.
san diego, ca USA
- Tuesday, January 11, 2000 at 16:13:51 (CST)
my mother just told me she has hepatitis c. i have no idea what that is. i am very
worried i looked it up on the web but the information is very limited. none of my
questions were answered.
phoenix, az USA
- Tuesday, January 11, 2000 at 15:14:55 (CST)
very good webpage. reading this webpage for my brother.
gainesville, tx USA
- Sunday, January 09, 2000 at 23:44:52 (CST)
I'm new to the hep.world...recently diagnosed...searching web sites for info..Thanks
for your support
Sandy, Ut USA
- Sunday, January 09, 2000 at 22:05:01 (CST)
Great site. Would like to chat with anyone around the Austin area with
hepC. Been on
combo since June99. Most days have been pretty rough, some hellacious, and some ok-thank
- Sunday, January 09, 2000 at 17:01:33 (CST)
Great site! Told I had hepC in Feb.99. Started combo treatment in June99. Day to day
is tough. Hard to teach and be on combo at the same time. Some days are hell.Have been
told my levels are so low,they're undectable, but should remain on combo for a whole year.
Bummer. Family tries to cope with me,but I'm sure it's hard to deal with someone who's
gripey all the time,forgets stuff a lot, and sleeps quite a lot instead of being a momma
and wife. My prayers to you all. God bless.
- Sunday, January 09, 2000 at 16:47:59 (CST)
My wife has Hep C without any liver damage. She has been on
interferon twice. Once for 2 weeks and once for 3 weeks, but
had to be taken off due to her CBC was 9.0 the first time
and went to 9.8 then 10.0 the 2nd time. We are looking for
some GOOD alternatives to interferon and rebetol. She passed
out the 1st time on the regimine and became very weak on the
2nd try at it.
Evergreen Park, IL. USA
- Saturday, January 08, 2000 at 15:13:49 (CST)
Great site! I was diagnosed with HepC in August 1998. Just finished a year of combo
treatment yesterday (1/6/00) My viral load was 1.3 million to start, undetected at 6
months & is now 500. Glad there is a support system!
Manns Harbor, NC USA
- Friday, January 07, 2000 at 21:41:51 (CST)
In December, 1999 I was diagnosed with Hep C. I have also had Crohn's Disease for
the last 23yrs. My gasto doctor said that I probably aquired Hep C from one of the
numerous blood transfusions that I've had through the years!! I'm really angry about this!
All of the emphasis has been on AIDS, what about Hep patients? Especially our Armed Forces
members and their families. Please let me know what I can do to help the coalition!! If
you would like, I could tell my story at the rally.
Fayetteville, North Carolina USA
- Friday, January 07, 2000 at 14:38:47 (CST)
I've recently tested positive for the Hepatitis C virus and am awaiting further
testing. I sincerely appreciate the information you've made available through your site
since the amount of misinformation out there is overwhelming and in many cases
frightening. Not to diminish the seriousness of my potential condition, but you've
inspired much optimism through making that information available.
Troup, Texas USA
- Friday, January 07, 2000 at 08:33:57 (CST)
I was recently given this site by a fellow sufferer. Thought I knew all the good
sites. I have been thru 3 different treatment regimes in 4 1/2 years. I am currently
working with someone newly diagnosed and scared.
pasadena, TX USA
- Thursday, January 06, 2000 at 22:23:01 (CST)
kalamazoo, michigan USA
- Thursday, January 06, 2000 at 12:03:43 (CST)
Searching the WEB I found your site and am uplifted at the thought of a community
dedicated to HCV. I will be starting the combo theropy next week. I have read Kevin's
regimen and would like to supplement the theropy with herb and vitamins. Does anyone know
if any of the items in the regimen interact with the Rebitron theropy? Well glad to have
found you all.
Woburn, MA USA
- Wednesday, January 05, 2000 at 06:47:58 (CST)
thanks for the site
brunswick, ga USA
- Wednesday, January 05, 2000 at 00:47:27 (CST)
Diagnosed with hep-c June 1996. Took entron-b for 13 months.Now have in-stage
cirrosus.On transplant waiting list since 2-26-99. Condition: slowly worsening each
day.THANKS FOR YOUR NICE SITE!!!!
absecon, nj USA
- Tuesday, January 04, 2000 at 15:58:35 (CST)
I look very forward to helping in the struggle against Hep C!
Worcester, MA USA
- Tuesday, January 04, 2000 at 15:55:27 (CST)
fight this fight for Hepatitis c.
Schulenburg, Texas USA
- Tuesday, January 04, 2000 at 07:11:40 (CST)
I love this site. It has been imformative and a comfort to me
for months. But only recently have started to join the cyber
world of communications. Thanks for being here.
- Monday, January 03, 2000 at 19:03:23 (CST)
A word to the wise! Don't think you doctor is going to cure. Take charge of you own
treatment do your homework. Its not as bleek as you may think. A cure is just around the
corner, keep your liver healthy.
Murrieta, CA USA
- Monday, January 03, 2000 at 17:19:53 (CST)
Hi - I am being treated now with the combo therapy. Ive been on it for 9 months now,
so just 3 to go. I am having surgery on 1/5/00 for ovarian cysts, so I will really be laid
up for a while. I want to support all out there who are having a difficult time on therapy
and who are undecided about therapy. Please start therapy a.s.a.p. my doc tried to say I
did not need it, but now is singing a different tune since it is working so well.
Have a prosperous new year
Pt. Charlotte, Florida USA
- Monday, January 03, 2000 at 14:28:52 (CST)
Cool site! I will try to make it to hep rally
Waxhaw, NC USA
- Monday, January 03, 2000 at 14:15:26 (CST)
Have been on treatment and am feeling better. There is hope. The depression does
cease and the symptoms and side affects do subside.
hot springs village, arkansas USA
- Monday, January 03, 2000 at 09:15:43 (CST)
Thank you for your site.
Raeford, NC USA - Sunday, January 02, 2000 at 14:46:44 (CST)
Was told alittle over a year ago, that I have Chronic Hepatitis C on boarder of
Cirrhosis. Finishing one year of Interferon & Rebetron. Treatment didn't work, must
have another liver biopsy in late Feb. Just found your web site last night. Was like
someone threw me a lifejacket! Have been on my own with this. Your my new home. Thank-you,
Patty VanReenen 12-31-99
Rochester, New York USA - Friday, December 31, 1999 at 19:29:50 (CST)
I HAVE BEEN DIAGNOSED WITH HEP C FOR ABOUT 5 YEARS AND HAVE BEEN IN REMISSION ABOUT 2
YEARS. THIS WAS AFTER 18 MONTHS OF INTERFERON TREATMENTS. I HOPE THIS IS SOME
ENCOURAGEMENT FOR THOSE OF YOU GOING THROUGH TREATMENT AT THIS TIME.
TWINSBURG , OHIO USA - Thursday, December 30, 1999 at 20:25:26 (CST)
I have Hep C did the combo for 6 months, and did very well however after 4 months it
came back so I will do it again starting next month. I feel so lucky to find out I had it
before it had me, fortunately my liver functions are very good. Right now besides all my
other vitamins I started taking Liquid Liver Extract and Thymulus (this supports the
thymus gland and immune system) hopefully this will help, after a month I'll do my blood
work and see if it has helped. If not I will go back on the combo as much as I dislike
doing it if it helps clear that bad boy out of me I'll do it. Afterall, its just another
step to getting there (oh these steps..too much fun)! Thanks Kevin for all you do and have
done and will do....we are all lucky to have you!
Oklahoma, Oklahoma USA - Thursday, December 30, 1999 at 19:19:18 (CST)
I first acquired Chrinic Fatigue Syndrom about 6 years ago, then got an tattoo and got
guess who Hep. C himself. It's been a downhill slide since, a nightmare to say the least.
And as most of you know the symptoms are endless. Each day is a struggle for me. At
present me viral load is a million and rising and audy, audy, audy, and infections almost
every 4 to 6 weeks. The doctors had me more antiobiotics, yea, yea, and send me home. I
have degenerating disks in my back and neck, reflux etc. The Dr.s want to wait till
there's a better treatment and not do interferon, another Dr. wants me on and is ferious
but can't put me on because she's my internest. SOOO I'm pretty much on my own here, and
am out of answers. I've tried chinese medicine and it has helped some. I have no support
group, and feel quite alone in all of this, and scard. I have an almost 10 year old girl
to raise and sometimes I wonder if I will be able to live that long. I try to look good on
the outside!, but inside I am always battling something. Sometimes when people say Oh you
don't look sick, I could just sock them, they have no idea. I need any information on any
new treatments, holistic preferably, and any support would be great.
Arnold, CA USA - Thursday, December 30, 1999 at 02:53:18 (CST)
I found out that i have hep.c in 1990
Springfield, Mo. USA - Tuesday, December 28, 1999 at 22:56:24 (CST)
I will start combo in about a week. Does anyone know what kind of symptoms I can
Jackson, MS USA - Monday, December 27, 1999 at 16:41:29 (CST)
I never thought so many people had hep. c
is there anyone out there that knows of a program that helps you pay for youre interferon
an ribavirin you have no insu.it cost over eleven hundred dollars a month.need help if
anyone out there knows of a program that helps people in my situation i would apperciate
email thank you Gary.
Clovis, New Mexico USA - Monday, December 27, 1999 at 11:48:20 (CST)
Thank you for all of your hard work, I have just finished 6mo of combo and hope that in
another 6mo that I'll recieve good news and still be negative. I do what I can in my
community to bring HCV awareness. It's great to get on line and be reminded that I'm not
alone out here. Thanks.
Clearlake, CA USA - Sunday, December 26, 1999 at 18:40:05 (CST)
I was so glad to find this site! I was diagnosed Dec.7, 1999, I am 43 years old with
two children. I am planning on having my husband and childen tested. This whole hep c thng
has been scary, but this site has helped. Thanks for being there. Leah AKA Southlily
kinston, nc USA - Sunday, December 26, 1999 at 11:43:53 (CST)
I was diagnosed with hepatitis C in May and am now starting my interferon in Dec. I am
interested in your web site and all the work you are doing. Thanks.
Leesburg, FL USA - Saturday, December 25, 1999 at 17:02:50 (CST)
Hi, my name is Martin. I am convinced I contracted hepititus c in a surgury
4 months ago. I am seeking others in the same boat. Thanks
Torrance, Ca. USA - Friday, December 24, 1999 at 20:38:41 (CST)
after reading the guest book I just want to say after 3 months of int. and
the side effects are so far tollerable but it works on my mind, more than any other of the
side effects most are talking about. the lack of energy comes in 2nd place.
Im interested to talk with anyone about this topic or any related topics
Its xmas eve so ......ho ho ho.....
seabrook, tx USA - Friday, December 24, 1999 at 19:19:37 (CST)
Please keep me informed on new treatments or newsworthy information
Poulsbo, washington USA - Thursday, December 23, 1999 at 12:02:56 (CST)
glad to have been able to access this site. tell me more
k.f., or USA - Wednesday, December 22, 1999 at 21:45:37 (CST)
what a wonderful site! I was diagnosed the first time, 10 yrs ago, I didn't know what
Hep C was and my doctor never explained it to me so for all that time I walked around with
this virus and didn't have a clue what a time bomb it was until I got another diagnosis
last May and by September I was on the combo treatment. I'm still going to school and
working but life has become a challage every single day.
pahoa, hawaii USA - Tuesday, December 21, 1999 at 20:36:20 (CST)
i am one of those oldtimers with 'poor liver function". my husband has also been
diagnosed recently. we need all the info we can get & were happy to learn about your
santa rosa, calif USA - Tuesday, December 21, 1999 at 19:22:21 (CST)
I just found out about 15 minutes ago that I have this condition. I will be setting an
appointment with a specialist who is going to be calling.
I have no history that relates to how you get this (problem). How have other people who
lead "normal" lives with no problems get such a thing?
Kensington, CT USA - Tuesday, December 21, 1999 at 13:23:34 (CST)
Having almost finished combination therapy as of this writing the yirus is undetectable
although I still feel the effects of the treatment. Being the Father of four it makes life
interesting to say the least. As a former professional athelete, this truly is the hardest
therapy Ive ever had to deal with. I cant imagine how some have had to suffer through the
side effects from the treatment. I just found this site as Ive preferred to stay quite
about this and deal with it from withing my family unit. If anyone needs to discuss they
plite or just to have someone to rap with Im always here and being a person in the public
eye I know what it is to hide or be isolated.
Green Bay, Wi. USA - Tuesday, December 21, 1999 at 12:57:21 (CST)
I WAS DIAGNOSED WITH HEP C ON OCT. 4 1996. I HAVE ONLY BEEN TO SEE ONE DOCTOR AT THAT
TIME AND HAVE YET TO GO TO SEE ANOTHER ONE. I FEEL FINE BUT I AM INTERESTED IN FINDING OUT
ABOUT WHAT I SHOULD DO
montreal, quebec canada - Sunday, December 19, 1999 at 00:02:57 (CST)
seeking dietary and natural healing guidelines
oakland, ca USA - Saturday, December 18, 1999 at 11:24:03 (CST)
I am one of the 10 to 15 percent of those who according to doctor Carey at the
Cleveland Clinic develop the antibody that gets rid of the HCV so I don't need any
treatments. I do feel for people who are fighting with HCV
Niles , OH USA - Friday, December 17, 1999 at 20:47:45 (CST)
Having the black background makes everything look nice, but I often don't have time to
read the information while it is on line and so, I print it out for a later time.
My eyes just aren't as good as they once were. So far I've been very intereste in what
I've seen. I was just notified the day after Thanksgiving (!) that I was positive.
Have already developed a support group, on-line and in town. That has been really good for
my morale. I had a second test that confirmed the first and have a third test
coming up in January, possibly with biopsy. I won't be able to start meds until March, but
in the meantime am taking one a day vitamins, Milk Thistle, Vit C, a calcium,
magnesium, zinc combination. In addition, I take Ginko Biloba for my memory. And Shark
Carilage and Osteo-bi-flex for my chondromalagia. Falling apart at 50!
Austin, Texas USA - Friday, December 17, 1999 at 18:41:32 (CST)
Que Pasa Kevin, I was diagnosed with HEP-C in 1990 and have progressed to end stage
liver disease. I took the treatment and it was bad but I lived through it, but it didn't
work. I'm working with a doctor in PITTS. PRESBY. Hospital and I'm waiting to get on the
transplant list. ANY SUGGESTIONS ?
YOUNGSTOWN, Ohio USA - Monday, December 13, 1999 at 19:34:59 (CST)
I have had Hepatitis C for 4 years now and I'm really scared about how I feel sometimes
and I'm scared that I might die and not be able to live to watch my kids grow up and to
spend time with them and my husband. I don't know who to talk to who really understands
what I'm feeling or what I'm going through or what my husband and kids are going through
also. Please help me through this.
Davenport, FL USA - Monday, December 13, 1999 at 10:19:47 (CST)
i am a very fortunate responder clear for 8 months post combo treatment. Still have
lingering problems, non-functioning thyroid, high blood pressure, joint aches but no
olympia, wa USA - Sunday, December 12, 1999 at 00:09:11 (CST)
Both myself and my wife were recently diagnosed with HCV, which was caught in my 40 yr.
physical during my blood screening. I had no idea and felt fine. After further testing my
liver function was slightly elevated and viral load relatively low at this time, my wife's
liver functions were normal. My doctor and myself are both very aggressive minded, and on
his recommedation I started Combination therapy this week 12/10/99. I have not
been genotyped or had a biopsy done at this time. I'm very active both in sports and at
Work as an engineer and do not know what to expect during this therapy, although I did get
flu like symptoms after the first night of interferon which subsided in about 12 hours.
I've been told the side effects will be worst at the start and lessen with time. What I'm
looking for is further information, and recommendations on diets, including protein, herb,
and vitamin supplements that will help during therapy. I'm also curious on what I should
expect in the upcoming months. Please e-mail me with any information or recommendations.
Morgan Hill, CA USA - Saturday, December 11, 1999 at 08:02:27 (CST)
I was Rx with Hep C in the fall of 1995. I probably caught it in the fall of 1977 while
in the Army. I Tried 24 weeks of interferon. It didn't work. Tried to forget I have the
desease and did OK most of the time. However, for the last 6 to 12 months I'm feeling much
much more fatigued and foggy headed and also some pain and awareness in the abdominal
area. I'm beginning to get scared. The worst part is the terrible lonliness I feel. No one
understands what I feel. Those closest to me think they do and that's worse because they
really don't have a clue. I'm starting on the herbs. From reading this appears to me to be
the best route. Anyone in W. North Carolina that wants to share their experience please
send an e-mail.
Marion, NC USA - Friday, December 10, 1999 at 12:01:02 (CST)
have been on combo treatment for 2 mths...starting to feel better except for the side
louisville, ky USA - Thursday, December 09, 1999 at 17:23:58 (CST)
Great site! Really wonder though how I could have gone 22 years undiagnosed after
constantly complaining of malaise, fatigue, light stools, upper rt quad pain, etc. All
symptoms. VA has done all my care since discharge in 1978. Miraculously, a random blood
test in the hall (for Hep C) found my dilema in Feb 99. Start treatment in January 2000
but i have cirrhosis which is contra-indicator for treatment. I guess I just don't
understand how it all works yet. Keep up the good work here. Didn't know about the claim
opportunity until Jan 99 either. Been out 21 years then. Well kept secret I'd say.
Iron Mtn, MI USA - Thursday, December 09, 1999 at 12:29:56 (CST)
I'm doing a project for university and you provided me with a lot of the info that i
Galway, Ireland - Tuesday, December 07, 1999 at 15:39:44 (CST)
Would like to meet others in my area. Please e-mail
Marion, NC USA - Tuesday, December 07, 1999 at 14:37:36 (CST)
I am looking for more information on symtoms and stages of hepatitis c.
Radcliff, Ky USA - Tuesday, December 07, 1999 at 01:28:28 (CST)
This was my first trip through this site. It's nice to find a place where others
understand. I'll be back.
Houston, Texas USA - Monday, December 06, 1999 at 22:12:34 (CST)
I was really glad to find this site and I want to thank Kevin for his information about
treatments and herbs. I was diagnosed with HepC a year and a half ago. I had a transfusion
when I was an infant, but I've gone 20 years without noticing any symptoms. The initial
liver biopsy indicated no liver damage at all. I decided to take inteferon injections and
ribavarin pills, and the amount of virus in my blood continued to decrease. For me the
inteferon didn't have any side effects, except for a little muscle soreness. I kept doing
gymnastics every day. I didn't feel tired. I know that one of the side effects is
depression, so I stopped taking the medication for a while, but if I go back on it, I
might have a decent chance of getting rid of the virus completely. Any advice you could
send my way would be appreciated.
USA - Monday, December 06, 1999 at 14:45:03 (CST)
Kevin, good for you. I'll try this regimen and see. I'm stage 4 cirrohsis now and just
diagnosed w/Hep c. Start treatments in January. Hope I can get through. God Bless you in
your efforts. I'm a former president of Phi Theta Kappa (scholatic society) and will help
with whatever I can. Just let me know. Best Wishes and Happy Holidays, Wendy W
Iron Mtn, MI USA - Monday, December 06, 1999 at 13:21:44 (CST)
we both have hepatitis-c and are fairly well informed but with a possibly terminal
disease, you can never be totally informed. any support or information we can get is
sincerely appreciated. thank you!
Charles & Linda
Maiden, NC USA - Saturday, December 04, 1999 at 10:59:30 (CST)
Hi Kev I found your site...great website for hep.
spoke w/ you on delphi chat (hepc) fri afternoon 12-3-99
Rock Hill, NY USA - Saturday, December 04, 1999 at 10:26:52 (CST)
I found out in March of 1999 that I have the HCV virus.I have finally found a good
doctor that seems to really care about me- Dr. S.K. Rajendran, M.D., I went to see him
today and he told me good news(I thank my Lord God Almighty for this)and he also told me
he wanted to start me on the Treatments to see if we couldn't totally get rid of the virus
from my body(in other words "KILL THAT DEMON").
Although, I do have one question to you.... Cooking on the iron skillets(that's about all
I have) is not a good thing then, right?
I know God is going to completely heal me of this demon(I call it)and get rid of it
forever-- patience is the key word here. I don't doubt God one bit... he will do it.
Thank you for your web and all the information that you and others have so tireless have
worked on for me and many, many others. Please pray that I do not loose my home.I will
pray for you and the other people I know that has this also.
Thank you and I appreciate you and that you are doing.
Pasadena, Texas USA - Friday, December 03, 1999 at 19:37:06 (CST)
I don't like this stuff.
Keller, Texas USA - Friday, December 03, 1999 at 15:38:50 (CST)
Found out in 1992 I had hep-c. Did the interferon(?) treatment for 1 yr. Now my doctor
only checks me out at my annual physical. Want to find out what's out there to try and how
I can help others in my boat. Heard about this site 11/30/99 on Wash, DC news radio, WTOP.
Odenton, MD USA - Wednesday, December 01, 1999 at 07:29:34 (CST)
I've known about my Hep-C for about a year now. I not doing any kind of shot as of yet.
Lytle Creek, CA USA - Tuesday, November 30, 1999 at 21:53:17 (CST)
I was diagnosed in July 99
Birmingham, Ala USA - Wednesday, December 01, 1999 at 03:50:32 (CST)
I am really glad that i finily got to the point to search on the internet. I have had HepC
for 26 yrs acording to the Doc. I am taking the therapy and responding ok on it so far..
altho i am feeling very week and the side affects are very varied. I am losing some weight
tho not alot....been on it for 4 months now.. blood work says the therapy is doing what
they had hoped but i am still wondering...what else could be going on ... (side affects)
they give a slip with the known side afects of taking the therapy but i still have some
problems understang the side affects..
all i know is i want to kill this thing that has invaded my body i would like more
information on this therapy Intron known side afects. also we have no support group here
... as far as i know i am the only one here in port henry that has HepC they have a group
in burlington vt but i have no way to get to them i would like to know how to get a group
support system up and going here for those of us with hepc or other forms of hep....i know
that it would help those of here in upstate ny..
to know we are not alone in this ... Thank you for being here...
Port Henry, NY USA - Tuesday, November 30, 1999 at 10:32:23 (CST)
I was diagnosed almost 2 years ago. So far, since then the past 7 months without any
therapy has been the best. I am a non-responder to interferon and did a trial on inteferon
Beta and did not respond to that either. It took 3-4 months to get it all out of my system
(if it really is).
Boyle, MS USA - Monday, November 29, 1999 at 20:14:50 (CST)
I am 60 years old and was verry hesitant about entering this treatment pprogram. I'm
still not certain I did the right thing as I feel the medication is killing anything good
I had. I weight 90 pounds and just plain feel so weak but its too far along to back out
now--only 3 mos left. I
wish someone could give me some thoughts...I feel desperate.
st. louis, missouri, missouri USA - Monday, November 29, 1999 at 23:55:01 (CST)
Mother of two children living in Westchester divorced basically happy except for having
hep c. Using MD hepatologist at NYU. Trying to not go on meds if possible.Would like to
meet other people with same situation to possible start local support group.Politically
connected and very involved in community and local temple.
Armonk Armonk , NY USA - Sunday, November 28, 1999 at 19:40:11 (CST)
was diagnosed in january. started combo therapy in february.went to half dose because
of white count. went back on full dose and now had to stop treatment because it keeps
getting worse. will hopefully find out tomorrow what will happen from here. my prayers to
anyone who has to endure this disease.
jackson, n.j. USA - Sunday, November 28, 1999 at 19:23:02 (CST)
I was diagnosed with hepatitis C in 1993 with end stage liver disease and recieved a
liver transplant in 1994. Once again my liver has been ravaged by hep c, stage 3 liver
disease. I will be going on an experimental interferon/combo treatment in January 2000. I
would like to make contact with anyone who has gone through this treatment post
Portland, OR USA - Sunday, November 28, 1999 at 17:12:18 (CST)
I was diagnosed a month and a half ago. Have been on rebetron
now for a month. I go in for liver biopsy in the a.m. Thanks for the great
site. It is a lot of help.
Lufkin, Texas USA - Sunday, November 28, 1999 at 16:10:30 (CST)
Thank You, I may try for the liverite study.
Moatsville, WV USA - Friday, November 26, 1999 at 16:58:40 (CST)
Love the fact that I can communicate with real people whit my same health problem. Some
more advanced and some more informed but all in all we are all on the road less taken.
Medication for the rest of our lives. Weather we like it or not, we have to remain health
concious and communicate with one another so that we may persevior. Our doctors maybe
guiding us threw our stages but all in all we have to take charge comit to a treatment log
our results and keep track of the changes in our bodies or the cause and effect of
medication. After all a doctor will not spend 24 hours a day with us and Rebetron thearapy
does not help my memory at all. So on with our new life time challenge & commitment to
Culver City, CA USA - Friday, November 26, 1999 at 20:36:06 (CST)
i have it and i dont know whats its doing what can i do to help others and myself
buckley, wa USA - Friday, November 26, 1999 at 13:19:39 (CST)
My father died when I was five from Hepatitis C. It was in 1992 and not many people
knew of the disease then, so
the doctors couldn't do much. He got into a car accident in high school and had to get a
blood transfusion. My mother and I believe that this is how the disease was transmitted.
Now I'm 13 and am
interested in more information about this disease. I'm glad that I'm not alone in this and
that there are other people out there that know about this and can help me find the
information I am looking for.
Ann Arbor, Michigan USA - Thursday, November 25, 1999 at 22:54:25 (CST)
Found out last year that I have had HCV for the past 14 years from a blood transfusion.
So far, my health is good, and I have minimal liver damage. I've decided to take a wait
and see attitude about treatment, hopefully something better than what we have now will
soon come along. I am a hospital Social Worker and am trying to look at my disease as an
opportunity to educate other professionals and provide support to patients. In spite of
all the negative aspects of HCV, I have to say that my life has actually improved since
diagnosis. I no longer waste time on unimportant, trivial issues, but have found an entire
new focus and reason to live.
Reno, NV USA - Wednesday, November 24, 1999 at 00:08:08 (CST)
I am a Hep. C sufferer
Brownsville, Tennessee USA - Tuesday, November 23, 1999 at 16:38:51 (CST)
I was just recently diagnosed with Hep C . I will be seeing a doctor about starting
medication. I have so much to learn. My wife and I are a little scared of what we can
I am glad I found this site, Thank you. Bob
Ft. Lauderdale, Florida USA - Monday, November 22, 1999 at 16:21:10 (CST)
I was diagnosed with Hep C in 1995. I had my first liver biopsy and was told that I had
inflammation of the liver, to follow up with an additional biopsy in 1999. I did have
another biopsy, only to discover that I've advanced to Fibrosis and bridging of the liver.
I am currently taking Ribavirrin and Interferon. The first month was an injection daily
with 5 Ribavirrin capsules. I am now taking same number of capsules daily, with injections
3 times weekly. My Physcian told me that I have Type II, which is more responsive to the
treatment that I'm receiving.
This Therapy has been very hard for me, itching, dry skin, flu like symptoms, lathargic,
with small bursts of energy. Inability to sleep and I also spend a lot of time in the
Any advice, will it get better?
Park City, UT 84098 USA - Sunday, November 21, 1999 at 01:15:36 (CST)
NEWLY DIAGNOSED WITH HEPATITIS C AND INTERESTED IN ALL INFO. ON TREATMENT TO FEEL
CORONA , CA. USA - Thursday, November 18, 1999 at 22:39:46 (CST)
Great Work - One of the Best Web Designs I have seen
VA USA - Wednesday, November 17, 1999 at 22:11:59 (CST)
Chelsea, Ala USA - Wednesday, November 17, 1999 at 13:01:22 (CST)
I have had Hep C for 11 years and am terminally ill with liver disease.
People need to be informed about the seriousness of Hep C.and websites like this can help.
Grand Canyon, Arizona USA - Wednesday, November 17, 1999 at 02:19:41 (CST)
Diagnosed with Hep C in 1997. Combined therapy not effective. Involved in L&I case
against hospital for possibility of infection during surgical procedures. Have worked in
surgical setting for 12 years. Presently being monitored only by doctor.
Bremerton, WA USA - Tuesday, November 16, 1999 at 14:01:55 (CST)
I am interested in your Washington D.C. rally. I will attempt to contact your
orginization. I have HCV, 20-25 years, many treatments "Inerferon and
Riboviren", Vietnam Vet. Am always looking for more info and help.
San Antonio, Texas USA - Tuesday, November 16, 1999 at 09:36:51 (CST)
I have a good friend with Hep C, is there a support group in the Seattle Washington
area? If so do you have their name, address and phone number(s)? Thanks
Seattle, WA USA - Monday, November 15, 1999 at 13:53:13 (CST)
How long Should interferon be taken before you can tell if the treatment
Atlanta, GA USA - Tuesday, November 16, 1999 at 04:40:25 (CST)
See you in DC
Glastonbury, CT USA - Monday, November 15, 1999 at 08:44:06 (CST)
Enjoyed the site. Was diagnosed with Hepatitis C antibody, screened for active virus -
nothing going on. However, still wondering about what is going on inside of me. I tell
everyone about my virus. Many are completely ignorant of it's existence. No idea (of
course) about how I acquired it. When I called for answers at the Liver Foundation, I felt
as though the receptionist was talking to some junkie. I've never even smoked a joint! I
felt as though I was hearing myself reading the articles. The frustration from being
a-symptomatic, but exhausted. I am doing well liver enzyme wise, but the general
practioner seems to dismiss my concerns. I met another sufferer recently and we discuss
the virus regularly. I can't tell you enough how nice it is to know I am not imagining the
aches and pains. Keep up the good work!!!!
Bella Vista, AR USA - Friday, November 12, 1999 at 15:39:41 (CST)
I have recently tested positive, and now after reading Kev's story know I am not crazy.
I have been persistently seeing a doctor for six months complaining of the "brain
fog", fatigue and non-specific pains. Finally after six months, I was tested for a
variety of "long shots", and came back with a positive finding. I suppose I can
be somewhat relieved to finally know what I'm facing, but I still have a difficult time
dealing with the "fog" and fatigue factors along with waking up each morning and
wondering, "Will today be a good day or a bad day?"
My prayers go out to everyone facing this disease, and I hope that you will pray for me.
Dracut, MA USA - Friday, November 12, 1999 at 12:47:04 (CST)
was diagnosed with hep c back in 1985...then it was called nonA nonB...has not been
active, but have experienced syptoms of activeness within the last few weeks.
Loudon, Tenn USA - Thursday, November 11, 1999 at 14:36:53 (CST)
Nice to know there is more support out there
Ephrata, WA USA - Wednesday, November 10, 1999 at 13:26:50 (CST)
THANK YOU 4 YOUR TIME AAND INFO.
PHILADELPHIA, PA USA - Tuesday, November 09, 1999 at 12:42:39 (CST)
I have been threw therapy for chronic hep c ,it was one of the tuffest things ive ever
done they say ive had it about 20 years i also have alot of pain in my abdomin. im going
to trust in god and try to take it one day at a time .im going to set up meetings soon in
my small town just about every week someone new comes and ask me about it becouse they are
possitive. i have contacted uab in birmingham al were i go to kirklin clinic at the liver
center to get things started. i no i wished i had more people to talk to
during the time i took the drugs,i go back in jan.2000 to see what the viral load will be
next. but im very tiered so like i said numbers dont matter im just trusting in god and
trying to keep life simple. thanks for being there this is a great web sight
demopolis, al USA - Tuesday, November 09, 1999 at 12:32:27 (CST)
I've had Hep C for 9 years now. It's in remission, so I have
no ill-effects in my daily life. I excercise alot, which
makes me feel better about myself and my predicament.
If there is anyway I can help, please contact me at the above
Sumner, WA USA - Tuesday, November 09, 1999 at 10:02:38 (CST)
just cruising the web to find useful info.
waynesboro, pennsylvania USA - Monday, November 08, 1999 at 15:26:07 (CST)
Hi I was diagnosed with HepC in 97 and was put on
interferon treatment which by the way
was HELL!!! however i stuck it out and after 48 weeks of treatment i feel fine and i
gained all my weight back. My last PCR showed that the virus was unditected, but my ALT
test is about 10x higher than it ever was even before i started treatment, my Doctores say
that it is normal for this flear? up has any body out there had this expirience? If so
please let me know or any Doctor who can explane. Thanks for a prompt respone.
Fajardo, Puerto Rico USA - Monday, November 08, 1999 at 10:04:59 (CST)
Great site! May save my brother's life, and many others! God bless...
Herndon, VA USA - Monday, November 08, 1999 at 09:29:22 (CST)
I just received word that I tested postivie for Hepatitis C.
More blood work on 11/9/99. Fiance tested positive, confirmed, biopsy
meet with Dr. soon to maybe(?) start on treatment I & R.
Minneapolis, MN USA - Monday, November 08, 1999 at 08:53:55 (CST)
Hi, I've had hepatitis C for about 30 years and am now taking Infergen. I just finished
a 36 week treatment and awaiting testing results. I know that they did not designate
hepatitis in 1969 with other than VIRAL or INFECTIOUS. But in Feb. 99 I was diagnosed with
Hepatitis A,B,and C of which only the hep C is virulent. That's my story as far as I know.
Norwich, CT USA - Saturday, November 06, 1999 at 16:10:54 (CST)
keep up the good work!
Telford, pa. USA - Thursday, November 04, 1999 at 19:18:54 (CST)
I think this site is a worderful resource. Thank-You.I am a fellow Hep C peoson who is
using the Alternetive-naturopathy approach with supplements. So far so good.
Kirtland, Ohio USA - Thursday, November 04, 1999 at 16:24:36 (CST)
I truely enjoyed this website. My mother was diagnosed a few years ago with Hep c so
I've been visiting sites trying to learn more about it. I enjoyed hearing the
"people's" stories from themselves about their trials and tribulations. I have
been trying to find info on health insurance and how it affects those who are diagnosed
with hep c. If you could send me any info I would apprieciate it. God Bless
St. Louis, MO USA - Tuesday, November 02, 1999 at 19:24:38 (CST)
Need help for treatment. Want to kown more about the V.A. I have no health insurance.
Not to sure where to begin. Thank you,
Talofofo, Guam USA - Tuesday, November 02, 1999 at 05:16:55 (CST)
I just learned of a brother being diagnosed with this disease. His liver was diagnosed
8 out of 10. What does this mean?
Toledo, Ohio USA - Monday, November 01, 1999 at 19:12:22 (CST)
my doctor's office called me today and informed me that i have hep c. i am a recovering
addict with seven years clean aand i am very scared. they are referring me to a
specialist. if someone could e-mail me and tell me what happens next as far as testing and
treatment and also answer a question for me - i am asst. director of a preschool and my
father seems to think that they can fire me because of this - am i contagious and is there
any risk involved as far as the children are concerned? please answer me aS soon as
possible - i am very scared!
glendale, az USA - Tuesday, October 26, 1999 at 21:46:38 (CDT)
my husband tony has hep c and has just started interferon treatments.I would like to be
on your mailing list. I am concern about how long he can work and if not he could lose his
health insurance. i need help and ADVICE
milford, conn. 06460 USA - Sunday, October 24, 1999 at 19:31:39 (CDT)
Diag 1996; 2 years interferon; 3 years no viral load; still not myself.
Big Sur, Ca USA - Friday, October 22, 1999 at 18:53:47 (CDT)
would like to know about tge side effects others experience
on combo therapy
jackson, nj USA - Thursday, October 21, 1999 at 19:49:05 (CDT)
this was very helpful! thanks for taking the time to make a great site. My husband has
cirrhosis and if you have info on that it would be most helpful.
Pasadena, Texas USA - Thursday, October 21, 1999 at 12:57:20 (CDT)
I am a 17 year suvivor of hep C and just found your web site. I have been on the
interferion for a year and just stopped because of th e side effects. I have been
searching for a support group in my area, For my family and myself to no avail. I am going
to try the herbal way for awhile if I
can find the information. I am 36 and have a 10 year old daughter. and am always seaching
norfolk, virgina USA - Wednesday, October 20, 1999 at 18:25:10 (CDT)
Hello, great site, i am a parent of a child,11yrs old with down syndrome, this week she
tested positive to hep c. please help me help her and the school district and community to
understand. thanks d.h.
alamogordo, nm USA - Wednesday, October 20, 1999 at 09:18:05 (CDT)
I was diagnosed in March of 1999 while at the doctor's for bronchitis, they do not know
where I got it from or how long I had it. I did a liver biopsy and my cells were undamaged
I feel tired sometimes, and have some aches and pains but I also had a car accident. I
have back and jaw problems. I drink a glass of wine on occasion and do not take tylenol or
anything of that nature. I have to take muscle relaxers, because of the pain. But all in
all I am learning about the disease. Your website has been very informative for me. Thank
New York, NY USA - Monday, October 18, 1999 at 11:32:57 (CDT)
Hi Kevin and Patty, Sitting here at Columbia State and just wanted to say hi. Kevin I
hope you are doing fine. I am doing well on the treatment except for my white cells are
dropping. My Liver enzymes are wonderful, at least that's what the doctor says. I'll call
columbia, tn USA - Monday, October 18, 1999 at 11:14:37 (CDT)
I found out I had Hep C with a routine physical. My blood tests showed elevated liver
funtion tests, so a hepatitis test was performed. I have completed the 12 month interferon
treatment, (tolerated it but didn't like it) it with good results, only to relapse after 3
months. Then tried the combo therapy for 6 months (ended it July 99). Now they want me to
have a go at it again. Always looking for alternatives.
Goodyear, az USA - Sunday, October 17, 1999 at 23:02:32 (CDT)
I'll talk later.
Derry, NH USA - Saturday, October 16, 1999 at 20:39:44 (CDT)
Positive that I GOT Hep C while working in a hospital as a resp therapist but didn't
know it until a year later. From what I hear Hep C is fairly common with the staff of most
hospitals its probably the best kept secret in this country. I've alway used herbs for all
my medical needs and because of this haven't had any problems/// MANDRAKE IS my choice for
Apopka, Florida USA - Saturday, October 16, 1999 at 13:09:20 (CDT)
I had know idea that so much info was available. I have resently been deferred as a
blood donner due too the hep c antibodys found in my blood and am awaiting the results of
the blood test to see what stage the disease is in. I found that no matter how hard I try
to remain positve about dealing with this disease, I have extrem bouts of depression. I
truly after browsing these page do not feel as helpless and hopeless as before . Thanks J
Cherokee, ca USA - Thursday, October 14, 1999 at 00:45:30 (CDT)
THOUGHT I WOULD SAY THANK YOU TO KEV. JUST FOUND OUT THAT I HAVE HEP C AND HE MADE ME
FEEL SO MUCH BETTER,LETTING ME KNOW THAT THIS DOESN'T HAVE TO BE A DEATH SENTENCE. I GUESS
I AM A NEWBIE HEPPER
ST.CLOUD, FLORIDA USA - Wednesday, October 13, 1999 at 15:39:22 (CDT)
Diagnosed with hep c in june 99. Liver biopsy revealed fibrosis, RNA viral load was
6,000,000. Began combo tx. in july. I am a single parent and the side effects of the combo
treatment have been terrible. I am keeping my job in spite of all the pain, so I do not
lose my insurance. Does anyone know why I have so much pain in my back, hips and legs?
I've lost 53lbs since June 1, 1999. I love life and would appreciate any support I can
give/get for anyone. I live in the Atlanta area. Thank you for your site
Kev, it's been a great help. Hope everyone is doing well.
tucker, ga USA
- Tuesday, October 12, 1999 at 12:48:03 (CDT)
Hepper since 1996
Wnet on the transplant list this summer
Chelmsford, MA USA
- Tuesday, October 12, 1999 at 09:14:55 (CDT)
have Hep C and had a liver transplant on June 1, 1999. I am doing really good and
have not developed any rejection.In some cases the Hep C comes back stronger after a
transplant.I am hopeing I will not fall into that group.Would not have made it through all
the sickness and depression if it had not been for my beautiful wife Jackie.I have alot of
respect for those who have to watch there Loved ones go through all the problems and
illness.Your the best!!!!!!!!We owe you everything and more.
Palm Springs, California USA
- Monday, October 11, 1999 at 17:54:32 (CDT)
Surfing and found this site. Got dx in March '97, did interferon 1 year ago,cleared
the virus and relasped. Enzyames normal. Might try a new treatment in March 2000, trying
hearbal right now and seem to be doing ok. Good site.
La Grange, Ca USA
- Monday, October 11, 1999 at 12:36:06 (CDT)
Please forward on to me any mass emails.
Annapolis, md USA
- Saturday, October 09, 1999 at 20:05:23 (CDT)
I'LL be at the Washington Rally 2000. This is a great informative site, I'll return
here often. Keep up the good work
Dover, DE. USA
- Saturday, October 09, 1999 at 09:04:58 (CDT)
HCV health-worker (nurse) looking for some common friends to talk.
- Friday, October 08, 1999 at 18:04:22 (CDT)
just found your site
summerville, sc USA
- Friday, October 08, 1999 at 16:21:52 (CDT)
My mother is dying from HEPc. She was infected through a blood transfusion. She has
four children that she will leave behind. I am praying for a miracle and all the others
infected by this horrible disease.
- Thursday, October 07, 1999 at 21:08:18 (CDT)
My mother is dying from HEPc. She was infected through a blood transfusion. She has
four children that she will leave behind. I am praying for a miracle and all the others
infected by this horrible disease.
mattawa, washington USA
- Thursday, October 07, 1999 at 20:57:13 (CDT)
Just learnt i have hepc, probably over 20yrs.Have cirhosis and await treatment in
this town, I would like to know what the latest treatments are in your town as here seems
to be behind the times.
- Thursday, October 07, 1999 at 15:10:02 (CDT)
Kev and Patti...it was great meeting you in Las Vegas. What wonderful people you
are. The hepfest was a huge success. Hope to see you again.
Apache Jct. , Az USA
- Thursday, October 07, 1999 at 01:29:37 (CDT)
My name is Joseph.
Ive had HEP C for 7 years now
I was on Interferon for 11 months and the new combination treatment for 5 more.
To be quite honest with you, the treatment made me feel worse than HEP C itself. The
side-effects were so bad that I couldnt even go back to work.
I was so fed up with the side effects that I just quit treatment all together.
Last March, I saw an article in “Natural Health” magazine called “ASK THE
EXPERTS” and there, Dr. Andrew Weil recommended a practitioner that
specializes in treating HEP C with alternative medicine. I took a chance and
looked up Dr. Zhang and have been on his treatment ever since. Not only did
my viral load drop, Dr. Zhang’s protocol has been able to normalize my liver
functions (fibrosis reduced and halted). In addition, I have never felt
better (his treatment has virtually no side-effects) since my contraction of
the disease. I went back to work and everything is going very well. Now that
my life is restored, I would really like to share this experience and
treatment with others that suffer from this same horrific disease.
There is hope.
ny, ny USA
- Thursday, October 07, 1999 at 00:39:23 (CDT)
Please help me. I have HEP C and autoimmune and I can't find how to be treated. My
doctor wants to treat me HEP C, but that is stupid, since it is dangerous to the
autoimmune. I just found out I have cirrhosis. I was only diagnosed a year ago with HEP C
and autoimmune a couple months ago. (Sure gave me a lot of time to work with my
body.....that is sarcastic...sorry)
SANTA MARIA, CA USA
- Wednesday, October 06, 1999 at 15:07:31 (CDT)
I am looking for help in raising media awareness and am looking for some Hep C
survivors in Ohio who are willing to talk to the media. We are doing this in the month of
October--please e-mail me at my address if you are willing to help. Thank you very much!
(This is an excellent Web site. Keep up the great work!)
Columbus, OH USA
- Wednesday, October 06, 1999 at 12:26:38 (CDT)
thanks for the info!
centralia, wa USA
- Wednesday, October 06, 1999 at 11:41:18 (CDT)
Diagnosed when my baby was 6 months old, now 2 1/2. Tried the interferon combo
treatment and broke out in hives. Not an alternative for me. Moved my little family to the
big city to be near family (makes me feel safer to be near my mom). My family is okay with
the fact I have this dreaded illness. My husband is a little less supportive and some of
his family members act a little funny towards me. (I didn't want everyone to know and they
do) My husband doesn't understand why I get tired so easily. The constant running around
after a toddler and the stairs that I'm not used to in this rowhouse exhaust me. I try to
have a positive outlook. It could be worse, I could have something like cancer. I lost my
dad to cancer last November. He went quick. At least I have time with my long awaited
invitro baby. Figures doesnt it.
Philadelphia, PA USA
- Wednesday, October 06, 1999 at 09:18:06 (CDT)
KEV I HOPE YOUR HAVING A GREAT TIME ON YOUR CURRENT TRAVEL!
SPRINGFIELD, MASSACHUSETTS USA
- Tuesday, October 05, 1999 at 20:23:12 (CDT)
Thank you for developing this site. Have had C for 25 years(that I am sure of).
Looking forward to participating in your efforts. Was not aware of the lack of government
support. Shocked to read the difference in the number of AIDS patients versus HCV
Lake Charles, LA USA
- Monday, October 04, 1999 at 07:45:58 (CDT)
I have learned so much about hepatitis c and different things to try, my 20 year old
son has it and I am very interested in alternative methods. Keep up the good work.
Colona , Il USA
- Saturday, October 02, 1999 at 23:35:50 (CDT)
Would like to get in touch with others who have infected spouse
Yelm, Wa. USA
- Saturday, October 02, 1999 at 02:26:17 (CDT)
A week after we got married me and my husband found out that we were infected with
hepatitis c. I was scared at first but the more I find out the easier it is to cope with.
I honestly believe that my attitude has alot to do with how I feel.My husband just got out
of prison in May and the whole time I was extremely sick. Since he got out I have forced
myself to keep active and positive.I honestly believe that is the reason I have stayed so
healthy.Thank you so much Kevin and his wonderful wife(sorry I forgot your first name)for
caring about us unfortunate people that our government has apparently chosen to turn their
backs on. It's people like you two that has helped me to decide to make the best of the
time that I do have left. When you do get back from the hepfest and see this please e-mail
me so I can get your e-mail address.THANKS AGAIN FOR CARING Patti in Utah
Patti and Al
St. George, Ut USA
- Saturday, October 02, 1999 at 02:22:13 (CDT)
i have just found out that i have hepc.just trying to find out what i am up against.
, calif. USA
- Friday, October 01, 1999 at 00:25:23 (CDT)
Thank you so much for this website
Salem , OR USA
- Thursday, September 30, 1999 at 12:54:14 (CDT)
anna, ohio USA
- Wednesday, September 29, 1999 at 12:45:47 (CDT)
I was diagnosed with chronic active hep-c in 1995. I do not fall into the suspected
catagories as to why I have this.No IV drugs, no transfusions, no alcohol or multiple sex
partners. Scary yes.I am a 48 year old married female and now seem to be feeling
exhausted, unambitious, etc. more than ever. so sad because I have a wonderful 10 year old
son who I need to keep up. I appreciated reading your regime as well as knowing you have
placed your situation in the hands of the Lord.
Hudson, Florida USA
- Tuesday, September 28, 1999 at 19:01:29 (CDT)
Just thought I would check out info. Have a close friend with Hep C and wanted to
know some more about it
Roy, Utah USA
- Monday, September 27, 1999 at 20:33:16 (CDT)
It`s nice to find this sight. I have Hep C and find it a bit scarey, so am looking
forward to getting to know others and learning all I can.
Tempe, Arizona USA
- Sunday, September 26, 1999 at 11:42:15 (CDT)
I really feel better after finding this site. Kudos to Kev!
Wimauma, FL USA
- Saturday, September 25, 1999 at 16:13:33 (CDT)
I would like to know about the dates Of the National rally. Congratulations on the
Thank you . Have a nice day.I would like to know directory oh Hepatologist in Miami, I
have Hepatitis C and would like to see a practitioner that is an specialist in Hepatitis.I
don't want to see a gastroenterologist unless his specialty is Hepatitis. Can somebody
help me? I am in highly need to see a physician since my health status is not the best.
Mrs. Rosario Betancourt
Homestead, Florida USA
- Friday, September 24, 1999 at 11:47:10 (CDT)
Can't get my interferon rebetron combination therapy. I have the prescription but no
body has it. They all say call around we don't carry it. I have been to walgreens and
snyders. They can't get it . Whats the problem? Don't they make enough? Help!!!!!
Inver Grove Hts., Mn. USA
- Thursday, September 23, 1999 at 18:42:57 (CDT)
Do you have a newsletter and counseling service?
Lampasas, TX USA
- Thursday, September 23, 1999 at 09:50:24 (CDT)
Hi Folk's.. 1st timer here.
Milwaukee, WI USA
- Monday, September 20, 1999 at 20:46:32 (CDT)
could be put on your mailing list?
frenchtown, nj USA
- Monday, September 20, 1999 at 15:47:54 (CDT)
Always nice to visit a hcv website, i have only known for
a year, but have had the virus for 24 years, the symptoms
are kicking my butt some days, haven't started treatment
yet...hope to soon.
Yellow Springs, Ohio USA
- Sunday, September 19, 1999 at 13:58:14 (CDT)
I have had hep C for 28 years, and I am doing very well.
Wimauma, FL USA
- Sunday, September 19, 1999 at 10:30:28 (CDT)
I am a 42 year old man looking for real people with real
answers to this thing i got. I was told a year ago that i
have hep c. I can't take medicine that is going top make me
sick. I have a familey to support.
better off dead. insurance ya know?
phoenix, az USA
- Saturday, September 18, 1999 at 14:12:44 (CDT)
Has anyone out there used photoluminescense therapy for HCV?
Has anyone tested positive and subsequently been cured? Is cure
possible? Or only treatment?
Redondo Beach, CA USA
- Saturday, September 18, 1999 at 13:40:47 (CDT)
Dear Kev I am a fellow hepper I was told in 91. I am a non responder. (still waiting
to get on the list) The docs all say I have no chance without the transplant! Lost all my
insurance/job during combo. I am starting to use Liverite 4 days ago. Energy level is
coming up. but also are the leg ulcers coming back. I think its because I am on my legs
more due to the rise in energy. what do you think? Your input has helped me understand
more about hep as has this web site. HAPPY TRAILS Sincerly Jay
round lake, ill. USA
- Friday, September 17, 1999 at 11:29:02 (CDT)
I am from Canada and I hope that this is not a problem.
I have Hep C and finding it very difficult dealing with it.
I am hoping to find comfort here.
Sault Ste. Marie, Ontario Canada
- Tuesday, September 14, 1999 at 14:07:12 (CDT)
I have already done 1 year of interferon. am now on rebatron 3time wk at 5 million
units also the pills daily.I was frist diagnosed about 6or7 years ago no treatment was
started then and i was led to Belive no worry Id be okay so I did not seek any more care
or treatment until i started feeling like crap all the time about 4 years ago. so now hear
i am feeling sorry for myself what to do Istay depressed all the time the only joy in my
life is my little boy he is my life and the only reason i have not ended my future life so
to speek my husband of 17 years is a alcholic who only cares for him self and just beat me
up about 8 weeks ago while in a drunk rage he also killed my sons kitten on purpose in
front of jacob he also saw his dad beating me uo tom says i have hep because i am week and
a nerve problem becuse i allow myself to be week my crappie life is my own fault but i did
nothing to get the hep it is unknown how i got please help is there anyone who cares i
just need a friend. i am so lonely and always tired i need more will for my son. any
sujestions.is life better after death would my son be better off with out his deppressed
mom hear yes by the way i took jacob on june 26 and left tom so he can no longer hurt us
but yet he still is and the hepatitis seems to be destroying my self and my ability to
have a life i try to be happy for jacob but he knows mommy is sick and sad and we are
alone I love my son and want to be hear for him I have full custody of him and i know if i
die he would have to live with is daddy but wouldnt that be better for him than seeing me
like this please if anyone can help me pleasewrite me thanks for listening sorry im not as
strong as most. does the deppression ever go away is there other hepc people as depressed
as me and as lonely? my son is wonderful i just think he shouldnt have to have a sick
mommy it is not fair to him and i am so dam mad at myself for feeling like i am cheating
him out of betterlife
help ....................roadrunnerrat rat ha thats me
MIAMISBURG, OHIO USA
- Tuesday, September 14, 1999 at 11:42:54 (CDT)
I would like to speak to anyone who has been on interferon 10ml units daily along
with 5x250 ribovarin daily for 48 wks
I am now nearing the end and feel totally drained of life and emotionally insecure
- Saturday, September 11, 1999 at 12:57:36 (CDT)
I have someone very near and dear to me who has had this nasty virus for 30 + yrs.
Could you send me all the info. possible. He also has a problem with sexdrive and I think
he feels he is abnormal
HE works, but can have a rough time in every other aspect such as tired, no appitite,
nausea, and so forth could you send me suggestions and any info. re: hep. C
Citrus Heights, Calif USA
- Thursday, September 09, 1999 at 13:58:17 (CDT)
My husband HCV. I have a support group in Paducah, KY. I would like to talk to any
one about this disease. thanks, Patti.
paducah, ky USA
- Thursday, September 09, 1999 at 09:04:38 (CDT)
Iam a concerned person with a significant other with this disease
richmond, va USA
- Wednesday, September 08, 1999 at 22:03:30 (CDT)
im interested in chatting with other people who have hep c
flemingsburg, ky USA
- Tuesday, September 07, 1999 at 13:40:34 (CDT)
I don't know where to begin and I certainly don't want to give up. I am falling in
love with a carrier of HCV and am battling against whether to stay or to go. Without
anywhere else to turn... I came here. If I could gather enough information and face the
fear of contracting this... well... I think that leaving him would never be an option.
There is also the issue of how much it's already effected his liver and where we will be
five or ten years down the line... I am selfishly terrified of not only being left alone,
but of the financial burdens for which I may be setting myself up. Where to begin to make
such decisions? Right here, I suppose. So, to start... I'd like to battle the fear. Thank
you for all that you do for all of us.
Monsey, New York USA
- Tuesday, September 07, 1999 at 11:35:56 (CDT)
Had liver transplant 5-31-99. Doing very well. No rejection or reactions to drugs.
Started support group for HCV patients in home town.
Hanford, Cal. USA
- Monday, September 06, 1999 at 00:59:11 (CDT)
About 2 yrs ago I was diagnosed w/Hep C. I've had bad liver enzyme readings since
1970, but Hep C was not diagnosed until 1997. Interferon seemed to help and all liver
enzyme readings went back to normal. The more I learn, the more I realize that Hep C is
not curable. It is scary, knowing that I'm probably going to die before my time, due to a
disease, that I have no idea, how I contracted.
new castle, de USA
- Monday, September 06, 1999 at 00:53:40 (CDT)
I am Hep-C virus positive. I am 40 years old. I served in the United States Marines
in Asia. I do not understand what is going to happen to me. I understand enough to know I
should be scared. I want to see my grandchildren.
Brick, NJ 08723 USA
- Saturday, September 04, 1999 at 20:18:29 (CDT)
I have recently been diagnosed with HCV.
Somewherein, AR USA
- Saturday, September 04, 1999 at 00:05:19 (CDT)
I have recently been diagnosed HCV patient, with a viral load of
++ with PCR test, and antibodies are 19 +ve.
the first doc i consulted says
that inferon combined with other
riba daily for three months will do, but the treatment is so
expensive that i cannot afford. i fall in low income category, and
in way bear the cost. can anyone tell me alternate treatment, have
just read kev's page, thinking of trying this therapy.
I would appreciate
if any one could share me his/her views and experiences
of having inferon and riba.
i admit that till todate, i have very little knowledge of this illness. and
frankly speaking i am quite scared.
thanks to all who have posted their messages in the guest book, i have saved a
few pages to read offline.
if ultimately i have to go for inferon and riba, can anyone of you guide me to
have this treatment on subsidized rates.
Rawalpindi, Punjab Pakistan
- Friday, September 03, 1999 at 11:46:43 (CDT)
My 78 year old grandmother was just diagnosed with Hep C. She had been a healthy
individual until March 99 when she had open heart surgery at a Hospital in Bridgeport, CT.
She did not have Hep C upon admission to the hospital for her surgery in March 99. During
the course of her hospitalization she recieved blood. This makes you wonder, was she
infected during her hospitalization??
Denver, CO USA
- Thursday, September 02, 1999 at 22:01:32 (CDT)
Just looking for information:)
scranton, pa USA
- Thursday, September 02, 1999 at 16:07:10 (CDT)
I would like to be added to any email newsletters you have.
Columbia, NJ USA
- Thursday, September 02, 1999 at 15:59:14 (CDT)
I am so grateful to my mother for sending me an article she found in a GNC Magazine.
I recently moved to Florida from Oregon and when I left Oregon my counts were good,
excellent the doctor said. But since being in Florida I am regressing back to the tired
all the time, kinda itchy, really moody and weight flucuation. I finally read the article
my mother sent and found this site and I am so happy I did. Thank you for Kev's story and
I am going to follow his regimen and see where that takes me. I take several of the herbs
already, but not high enough doses, and I need to do away with the red meat. I would love
to hear from Kev and any others that might like to share their experience of this thing
called HepC...I still have a hard time admitting to it's existence, even after 2 years.
Though I guard against infecting anyone else...it's still hard for me to swallow I have
this thing....Thank you for being here....
- Wednesday, September 01, 1999 at 22:43:35 (CDT)
I have recently been diagnosed with hepatitis C, but don't
have much knowledge on the subject. I am trying to learn more, and would apprieciate any
information I can recieve.
New Orleans, LA. USA
- Wednesday, September 01, 1999 at 08:52:54 (CDT)
I just discovered I have HCV, so found your site.
Escondido, Ca USA
- Tuesday, August 31, 1999 at 23:02:25 (CDT)
I have Just now found out that I have Hep-C after
having the blood work done several months ago, And
I would not have known if I hadn.t called and inquired
about my test results at which point some girl not really
knowing who I was told me over the phone that I had Hep-C.
and that is all I was not imformed as to how serious it
is and that I can transmit it to others, What can I do???
Mesa, Arizona USA
- Tuesday, August 31, 1999 at 10:17:44 (CDT)
I am happy I have had the opportunity to visit your site. I am a Hep C
"newbie" and feel free to contact me, any info welcome!
Las Vegas, Nevada USA
- Thursday, August 26, 1999 at 23:50:48 (CDT)
i and many people iknow are positive with this disease its terrible that a major
epidemic is here and the media isnt being used more to help people need i say more???
amarillo, texas USA
- Wednesday, August 25, 1999 at 22:44:07 (CDT)
Hi, I have chronic active HCV and was wondering if you
might know of a list of others in Santa Barbara? There
is a support group here but I don't like groups that much
and they are more of a club thing. I need to speak with
someone that would understand where I am coming from. For
example , what HCV has done to my marriage of 21 years. My
wife doesn't want anything to do with me any more. I have not touched her in 5 years. A
lot do to money, but I just
bought her a new car, etc.. In groups , if you start telling
people that, they think your looking for a date or something
on thoses lines. To be honest though it would not be a bad
thing. Anyway it would be great to be able to talk to someone now and then on the phone or
in person, but no group
setting. If you know of such a list please reply. And
thanks so much for doing what your doing...Bruce
Santa Barbara, CA USA
- Wednesday, August 25, 1999 at 14:52:55 (CDT)
i enjoyed this site, i also have hep c, i am 42 on the 26th of aug.,hopefully with
info i get off of this site i will have a normal life. thanks
richmond, va USA
- Wednesday, August 25, 1999 at 12:18:48 (CDT)
I have been diagnosed with Hepatitis C, however it is not active yet.
San Antonio, Texas USA
- Tuesday, August 24, 1999 at 21:25:31 (CDT)
Going off of Rebetron therapy today.Starting Kev's Regimen tomorrow.Thanks for the
insight,I was ready to give up and pull the trigger,but the Lord steered me to your
site,and I have a fresh new outlook.Thank you again.Big Kev
Big Kev/Las Vegas
- Tuesday, August 24, 1999 at 14:30:51 (CDT)
Great site... my first download of info after diagnosis... much needed detail of
alternative treatments (Kev's regimen)and links to others most valuable. Thanks.
Skokie, IL USA
- Monday, August 23, 1999 at 09:13:22 (CDT)
Thanks for the information.
Maricopa, Az USA
- Sunday, August 22, 1999 at 17:41:12 (CDT)
I was diagnosed with Hep. C @ 2 years ago. I have received no treatment. My doctor
orders blood work. I have no symptons except occasionally I have bouts of nausea and
frequently tired. Dr. has suggested a liver biopsy. I'm not thrilled with the thought. I
had a blood transfusion 34 years ago and have been a nurse for 20 years in a psychiatric
hospital. Iv've never used drugs and have been in a monagamous marriage for over 22 years.
Waterford, N.J. USA
- Sunday, August 22, 1999 at 11:58:25 (CDT)
very interesting material. I would like to get involved in the awareness movement,
mason, ohio USA
- Saturday, August 21, 1999 at 06:00:02 (CDT)
I would like to talk to other hepmates. Sometimes I feel like nobody understands or
glastonbury, Ct USA
- Thursday, August 19, 1999 at 20:09:34 (CDT)
I would like to correspond with others whom are in the same condition or similar to
mine. When I was first diagnosed in 1996 my physician assumed I was a carrier. I have a
low viral load 25k, my liver enzymes have always tested normal and my liver biopsy was
uneventful. Virus has not been to my liver YET. I'm 43 years old, athletic and I'm still
competing in Mountain Runs, Cross Country, and Nordic skiing. However, I do sometimes feel
fatigued, I have occasioanl nausea, and my weight is down. I'm never sure if my training
is casing my symptoms or is is the Hep C? I do in for labs 2X per year.(very expensive) My
insurance company termintated my claim. Had a new claim when I tested positive. So I'm
presently without insurance. I'm not in a panic at this time, but I often wonder if I'm
going to become ill like so many others with Hep C. If anyone has a similar experience
plase contact me.
Anchorage, Alaska USA
- Thursday, August 19, 1999 at 15:02:05 (CDT)
One of the most informatve sites
Anchorage, Alaska USA
- Thursday, August 19, 1999 at 14:45:24 (CDT)
Would like to join in on the rally. Plus any info. on what to do to start support
group in my area. Thanks for the site. Do you know of any hep open chat sites, besides
Hot Springs, Arkansas USA
- Thursday, August 19, 1999 at 04:07:20 (CDT)
I recently was diagnosed with Hep C (Chronic Active)
What else can I say other than finally I know what is wrong with me!
Davie, Fl USA - Saturday, May 22, 1999 at 23:46:57 (CDT)
I have daughter in California with Hep C. I need help to know how to deal with her
"brain fog" when I visit her in June and she wants to discontinue treatment. How
can I help her stay with it and convince her. Need Kevin's E mail address please so I can
talk to him. Thanks for all.
Richmond, In 47374 USA - Friday, May 21, 1999 at 08:52:41 (CDT)
Was diagnosed in 1996. Liver biopsy showed no fibrosis nor scirrosis. Did the
Interferon thing in 97..non-responder. Been using herbs and natural products since. In
1996 my HCV count was 1,000,000 last time I checked was 480,000. I thank my God YaHWeH and
his Son Yahshua for their support and never ending love. Very nice site, thanks,
West Palm Beach, FL USA - Friday, May 21, 1999 at 12:18:19 (CDT)
hepc 3 months diagnose.
Mulberry, FL. USA - Wednesday, May 19, 1999 at 17:56:19 (CDT)
I am looking for information about the effects of this disease on children. I have a
parishioner whose 3 year old daughter is infected. You can imagine she is very upset and
fearful for her daughter's health. The mother herself has been diagnosed with hepatitis c.
Farmingville, NY USA - Wednesday, May 19, 1999 at 15:07:18 (CDT)
I have hepatitis c have done 1 year of treatment on interferon. Am fixing to start on
the combo drug rebetron. not looking forward to it.BUT I have a wonderful 6 year old so i
have to do what ever it takes to be arund for him plus I have 3 more children who are
grown one in college one fixing to marry and the other graduates in 2001 interferon was
rough i was basically sick the whole time with flu like symptoms applied for disability
but was denied have reapplied because i no the combo will be just as bad or worse. any one
who can help or who has applied and recieved the disability or has any suggestions please
GLENNVILLE, GEORGIA USA - Wednesday, May 19, 1999 at 11:45:53 (CDT)
Oh how glad i was when I found this sight. but i'm very disappointed in finding nothing
that would answer my questions concerning HCV. Are there going to be a web sight that is
full of information about this desease Hope you can Help Me Befor its to late Thanks
anyway this is a start I will be coming back and hope to find a more informed sight
Praying for all
State Road , NC USA - Tuesday, May 18, 1999 at 13:00:53 (CDT)
I just found out that I.ve had hep. C for the past 20 or so years and it;s scaring the
Hell out of me.....My name is Bill--------Thanks & God Bless
Tujunga, CA. USA - Tuesday, May 18, 1999 at 10:21:26 (CDT)
Hi, I have cronic active Hep C,end stage liver decease.
Been told I need a transplant,haveing web sites like this is great.
Melrose, MASS USA - Monday, May 17, 1999 at 13:32:58 (CDT)
Diagnosed 11/97 with B & C. So far no treatment received, have tumor on liver, no
biopsy done. Not sure where I at with the disease.
Thank you for being here to help.
Houston, Texas USA - Sunday, May 16, 1999 at 05:49:12 (CDT)
I have thought giving up but I have a Daughter and grand-daughter
that it would heart but right now, I have hep c and tried treatment interfreon and rebotol
so just hanging out now
CA USA - Saturday, May 15, 1999 at 16:18:26 (CDT)
As a non responder to ribovirin/interferon good to have a site where more information
Mohegan Lake, NY USA - Saturday, May 15, 1999 at 10:43:42 (CDT)
I lost a brother in May 1998. He was 40 yrs old. I just found out my sister (who's
32)has hep c.Are there programs to help her get the medication she needs?
seaside, oregon USA - Thursday, May 13, 1999 at 22:33:38 (CDT)
I have hep C I am just starting my interferon. Just looking for someone to talk to that
has hep c and would like to chat.
I am keeping my chin up but it is hard. Please respond. Thanks
Lima, OH USA - Thursday, May 13, 1999 at 13:48:47 (CDT)
formerly "samiyyamm", announcer during "dragon boxing match" of
prior times and places. thanx, Kevin; i do appreciate your input and advice and info.
Nixa, MO USA - Monday, May 10, 1999 at 19:36:33 (CDT)
I was diagnosed with HepC in 94. Had a liver biopsy and found some damage. The gastro I
was seeing put me on interferon which after 6 months of these shots I developed a toxic
reaction. After the interferon was out of my system I began feeling much better. Until
about a year ago I did not have any real syptoms to speak of. I began putting on alot of
weight in the abdomen area, was sent to gastros, gynos, internal medicine doctors after
many test nothing prevailed. Something is wrong though. I swell up from time to time like
I am 6 months pregnant, lots of different types of pain mostly soreness in the abdomen and
upper chestwall around the right side, and sometimes I feel like my liver is flopping back
and forth. Sounds crazy I guess but thats me. I can't get into see a doctor because of it
not being lifethreatening and is told that everyone has this HepC, but in the meantime
WHAT CAN I DO. I have 5 kids and no energy to even talk with them muchless play. And they
don't understand why Mom is always tired. Have any good advise? Frustrated but, a
believer that through God's help we will all be better.
Tampa, Florida USA - Tuesday, May 11, 1999 at 14:56:53 (CDT)
I got hep-c from a blood transfusion in 1979 and diagnosed in 1994. I was on IFN in 95
and did the combo July 97 thru July 98. I know the nighmare you newbies are going through,
I and a lot of others have been there and this forum helps a lot so don't hesitate to call
on it, we can help one another.
Houston, Texas USA - Friday, May 07, 1999 at 17:31:21 (CDT)
SEATTLE, WA USA - Sunday, May 02, 1999 at 20:30:49 (CDT)
My wife Jacque was diagnosed with hepatitis-c four years ago and is on the
transplant list at the university of washington. Jacque is a retired nurse so it's not
hard to determine how she acquired hep-c.
Bellevue, Wa. USA
- Wednesday, April 21, 1999 at 11:45:13 (CDT)
It is good to see more information available. Most people I talk to either do not
have much knowledge of the subject or do not realize how rampant it is spreading.
Kennesaw, GA USA
- Tuesday, April 20, 1999 at 23:14:16 (CDT)
I just found out my brother has Hepatitis C. I'm searching the web for natural
healers. Any help would be appreciated.
California City, CA USA
- Monday, April 19, 1999 at 23:15:34 (CDT)
Would like to correspond with others with this disease. I am new to this and just
Texarkana, Tx USA
- Monday, April 19, 1999 at 22:39:39 (CDT)
I have a friend in need of assistance and a support group in th Orlando, Florida.
He is not able to work and is falling behind in rent and has difficulty getting out to get
medication,food. seems unable or disinterested in caring for himself. Please respond with
any services available in area or suggestions for his family memmbers in getting support
and dealing with their needs as well.
Glad I found this site. Thank you for caring.
Orlando, Florida USA
- Monday, April 19, 1999 at 20:39:42 (CDT)
This is a wonderful site, thanks for being here!!!!As Chair for the USHA Rally in
Olympia I am learning about the network of helpers in the battle to educate and get
funding for support and social programs to help all who have this virus.
Seattle, WA USA
- Monday, April 19, 1999 at 01:14:17 (CDT)
Great Site Kev! Hang In There Brother, keep that positive thinkin online.
Scranton, Pa USA
- Saturday, April 17, 1999 at 18:33:19 (CDT)
Thank you for the dedicated support of all Heppers. I would be interested in hosting
a chat room if needed.
St. Louis, MO
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June 22, 2012