All kinds of hepatitis C information

 

   
 


Hepatitis C is difficult to understand, and there are LOTS of "experts" out there who are more than willing to take advantage of the uninformed.  Please feel free to call our National Support Line for more detailed and personal attention related to hepatitis C (number listed above).

The folks who keep the NHCC in operation are unique people. ALL are volunteers who help fund our daily operations, tend to our telephone support lines, attend health fairs, and do just about anything necessary to help the NHCC continue to operate. These folks are required to have extensive and personal hepatitis C experience behind them before speaking to patients or family members about the disease, but this is just so we can make sure that what's shared is honest, trustworthy, and that our reputation remains stellar and accurate as always.

Times are difficult for most folks and money is tight. However, we too have significant expenses just keeping the NHCC in operation, and this is why it's so important that we reach out to good people like yourselves who will help us remain active for the "cause".

Please remember us in your prayers as well as with your financial contributions, and we promise that we'll do our very best to be here when you need us!

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CLICK HERE FOR NATALIE COLE'S VIDEO INTERVIEW
A discussion with Larry King about her need for kidney transplantation after only 4 mo. of hepatitis C treatments!

 


Bev and Phil's Story
(by Bev)

 

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I am a nurse originally from Los Angeles. I lost my husband in 1997  to Hep C/Cirrhosis/Hepatocellular Carcinoma. He was my whole life. My everything. We did the interferon. He did really well for around four years and I kept screaming to the doctors in this area of New Jersey and no one would listen to me. I kept telling them I felt it was turning into cancer and they absolutely wouldn't listen. Ignorant and making much money on bloodwork, bloodwork, bloodwork. Finally January 1997, his bloodwork started going up just a little and I became so angry and insisted if they didn't run the tests I wanted I would notify the news station in Philadelphia. They did the tests. One radiologist said it could be cancer and the G.I. here actually took it around, I guess until he found one that said no.  (I found this out after the fact) THEN a month later his bloodwork went up some more. I had not lived in this area long and I tried to get him to go back to Los Angeles with me because I know some really good guys out there but he didn't want to go. He trusted me completely, and we went through so much together. I had to cause such havoc and they finally sent us to Philly in June and we were told it was too late. He is now my guardian angel. I miss him so. He was the most wonderful guy in the whole world and  he never complained. His physical appearance didn't show the signs until July. He became jaundice, incredible ascites and edema and eventually hemmorage. I hate my profession for doing this. They do it to so many people. They act like they know everything at the cost of others lives and making big bucks with the drug companies using all their experimental drugs charging sky high top dollar money in their fifteen room mansions and double Mercedes and country clubs----and I'm a NURSE!!!!!!!!!!!!!!!!!! From the moment we found out he had Hep C,  I MYSELF ran the tests without permission because no one else would. I almost lost my job because of it.  In 1989  no one around here even knew what it was. I have studied everything and anything there is to know about Hep C from top to bottom. The worst thing is the lack of funding and it is even more prominent that AIDS! There are thousands of people out there that don't even know they have it. That's why they call it "The Hidden Epidemic". To me life is not worth living without my husband but the one thing that is keeping me going is I will get to the bottom of it. I have decided to devote the rest of my career to Hep C. I have decided to dedicate my continuing career to the study and research of this disease and I will continue to do so as long as I can keep my head above water . Financially I don't care if I have to live in the street to continue this. I'll do it. I'll go sit on the Presidents doorstep if I have to. Wake up America. It's all about money damnit and that's not what health care and taking care of people is all about.


The opinions expressed on this page are solely those of the author and none of the information included is to be misconstrued as medical advise.

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Last Updated March 20, 2012