Deb and Jeff''s Story
is Debbie and my hubby Jeff has Hep C. He was diagnosed in Feb 1997. As soon as we
found out our primary care physician sent him to a liver specialist. This
"specialist" ordered a liver biopsy which showed cirrhosis. As soon as the
biopsy results were in he recommended that Jeff take the Interferon. So he
sent him to the lab for more blood work and before those results were even back Jeff
started on Interferon.
that same time I started searching the Internet for information on Hep C. The first
site I found was "Planet Maggie". I printed 72 pages of Hep C information
that day and when I went back to the site
it was gone!! I was crushed!!
I sent her an e mail and she explained that she had had the site for 3 years and had to
close it because of her employer. I didnt know where else to turn. I was new
to AOL and this Internet stuff and was seriously lost. I asked around and typed in
all the "appropriate" keywords, but wasnt getting anywhere. Somehow
, quite by accident, I stumbled on a message board on AOL for "infectious and
contagious" diseases and low and behold
Hep C was listed. I thank God
everyday for that day. I read over 300 posts that day
I was in heaven, happy
and sad all at the same time. These were real live people out there having the same
concerns and questions that I was having and someone was helping them. I finally got
brave one day and posted a message of my own. My God the e mail started coming in ,
folks sending me information, web sites, friendly letters of support, a couple of weekly
chat groups. I was amazed. It had taken me weeks to find these people and
because of these people we now felt a little better in our fight with this Dragon.
We at least had some information and that seemed to be more than our "1st"
doctor had to offer.
fired that 1st doctor and found another. Jeff continued the Interferon for 3 ½
months. He suffered the "usual" side effects plus some. At the end
he was having a hard time walking because of pains in his legs and feet. This was no
"flu" symptom. His WBC RBC and Platelets were almost off the board.
He fainted and had bloody bowel movements. They put him in the hospital and did a
colonoscopy. Found out he had "Pseudomembrane colitis". Some
information I gathered from the Web says this is caused by "nearly all
since he had not been on any antibiotics, we can only assume the
Interferon may have helped this condition along. (Riba, by the way is listed as a cause of
this) Finally on
08/21/97 after a PCR came back "positive" Jeff decided on his own to quit the
Interferon as it was "interfering with life". We left several messages for
the new doc to call us and 3 weeks after Jeff had stopped Interferon on his own, the doc
finally called an left a message on our phone for him to stop as he was a "non
his body was responding to it
everything was going
to hell. It might not have been curing the virus but it was sure playing havoc with
the rest of him.
Jeff is on herbs only. We realize that the virus is still there and the herbs
probably arent gonna "cure" it. But he is a human being again.
He has no more "flu-like" symptoms, no more bloody bowel movements, his WBC RBC
and Platelets are coming back to normal and he can walk and talk again. Were
willing to take our chances. Sometimes its the "quality" of life that
counts. I want to
thank all my "on line" friends for all the information and support they
have provided. My special thanks to Kevin (HEPPER) for making this site available
and for providing a daily chat room that we can all enjoy.
I have attached links to all my
"favorite places" that have helped us in this fight with the Dragon and hope
that you to will find the love and support out there that I did.
One last thing
. we cant be
sure how Jeff got it. Whether from "growing up in the sixties" or
from a blood transfusion that he received in 1993, when they were
"suppose" to be testing
we dont care anymore "where he got
.if we knew
."WE WOULD GIVE IT BACK!!!!
The opinions expressed on
this page are solely those of the author and none of the information included is to be
misconstrued as medical advise.
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© 1997-2012 National Hepatitis C Coalition, Inc.
All Rights Reserved
March 20, 2012