Deb and Bill's Story

Deb and Bill's Story
(by Debi )

My name is Debi and I am 45, with 2 children 9&14. My diagnosis came in October 2001. Even though I had encephalitis of the brain so bad, I didn't know my husband Bill after 15 years, or my kids Branden and Dylan. Even though I was seeing doctors, they kept giving Bill the wrong diagnosis, until I went into a coma in October of 2000.

One thing I guess I feel lucky about is after the coma, I did finally got Social Security disability, which from my understanding, others are having a rough time getting. I haven't worked since August of 1999 because of the skin breakouts, gall bladder disease, etc. Yes, you do have to be almost dead to qualify for Social Security. At this time I don't qualify for my husband's insurance and I make $20.00 too much to go on Medicaid. So I no longer go to any doctors after taking out bankruptcy for the $100,000.00 worth of hospitalization. We did lose our home and our children had to live with their grandmother for a year during the time I didn't know who they were.

We've now moved, my family is back together and that alone keeps me going. My brother also had hepatitis and left us at the age of 39.

The opinions expressed on this page are solely those of the author and none of the information included is to be misconstrued as medical advise.

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Last Updated January 04, 2012