(by Debi )
My name is
Debi and I am 45, with 2 children 9&14. My diagnosis came in October
2001. Even though I had encephalitis of the brain so bad, I didn't know
my husband Bill after 15 years, or my kids Branden and Dylan. Even though
I was seeing doctors, they kept giving Bill the wrong diagnosis, until I
went into a coma in October of 2000.
One thing I guess I
feel lucky about is after the coma, I did finally got Social Security
disability, which from my understanding, others are having a rough time
getting. I haven't worked since August of 1999 because of the skin
breakouts, gall bladder disease, etc. Yes, you do have to be almost
dead to qualify for Social Security. At this time I don't qualify
for my husband's insurance and I make $20.00 too much to go on Medicaid.
So I no longer go to any doctors after taking out bankruptcy for the
$100,000.00 worth of hospitalization. We did lose our home and our
children had to live with their grandmother for a year during the time I
didn't know who they were.
We've now moved, my
family is back together and that alone keeps me going. My brother
also had hepatitis and left us at the age of 39.
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March 20, 2012