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Hepatitis C is difficult to understand, and there are LOTS of "experts" out there who are more than willing to take advantage of the uninformed.  Please feel free to call our National Support Line for more detailed and personal attention related to hepatitis C (number listed above).

The folks who keep the NHCC in operation are unique people. ALL are volunteers who help fund our daily operations, tend to our telephone support lines, attend health fairs, and do just about anything necessary to help the NHCC continue to operate. These folks are required to have extensive and personal hepatitis C experience behind them before speaking to patients or family members about the disease, but this is just so we can make sure that what's shared is honest, trustworthy, and that our reputation remains stellar and accurate as always.

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CLICK HERE FOR NATALIE COLE'S VIDEO INTERVIEW
A discussion with Larry King about her need for kidney transplantation after only 4 mo. of hepatitis C treatments!

 


Jeanie's Story
(by Jeanie)

I have hep C and have encountered a very difficult problem. I was diagnosed in 1985 when it was called non a non b. I was diagnosed with fibromyalgia in 1999. Since that time I was in a serious auto accident in which my knees shattered the dash. I believe there was also internal damage but of course it was never treated seriously. On a routine trip for lab work I was humiliated and degraded but not to my face. I always alert the medical persons who will be coming into contact with my blood that I do have chronic hep C. I did this as usual and also told the technician that they have to use butterfly type needles as my veins either collapse or roll.  The tech that was suppose to do my blood did not want to do it and then the one who attempted poked me 5 times because she was afraid to touch me. She then pulled out a very large barreled needle that was over 2" long.  I had looked away and she was getting ready to stick with the too large of a needle and I told her I don't think so. She treated me disrespectfully and discounted years of what others had found out, "anything above a butterfly is asking for trouble".

To make matters even worse my husband was having labs done as well although they did not know who he was when they called him back. After I walked out to go to the administration and make a complaint, my husband went in and noticed the personnel showing each other a tube of blood which turned out to be mine. My husband overheard one of the employees asking another "is this what hep C looks like?" and they were talking about the "crippled up old woman with no teeth" (meaning me) in front of my husband. Needless to say this was embarrassing and very unprofessional.

Over time I have been bounced from one bozo to another. All the doctors seem to say is they feel my knees need surgery.  Because they get side tracked to my fibromyalgia and rheumatoid arthritis I have to suffer due to the fact that my knee caps do not track properly. The accident dislocated them and because of this I am prone to lose my balance and can not stay on my feet for very long at a time. Instead of listening to me though when I've complained, they treat me like a hypochondriac even after showing me on x-ray why my knees do not function correctly.

Now as a result of the way I was treated at the lab previously, I can no longer bring myself to go do the periodic bloodwork to monitor my hepatitis C. The worst part is that I I got my hep C in the first place because I mistakenly received the blood of someone else during surgery instead of my own which I had banked ahead of time specifically for my own transfusion.  

The sad part is there is nothing I can do about any of this other than give up and resign myself to the fact I will never get better because they have already decided I am not worth the time it takes to really hear me, and they only pay attention to the fibro, hep c, and rheumatoid arthritis. Never mind that I was a passenger in a serious auto accident. Even though I may have chronic hep C I am still a HUMAN BEING.

 

Jeanie

 

The opinions expressed on this page are solely those of the author and none of the information included is to be misconstrued as medical advise.

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Last Updated March 20, 2012